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My son lives inside an un-diagnosed NIGHTMARE that I cannot awaken him from! I am BEGGING you (the public) to PLEASE, PLEASE, PLEASE, HELP ME FIND SOMEONE who can identity what my boy has. SOMEONE who can awaken him from the ANGUISH of uncontrolled trembling and pain that he suffers from...Trembling and pain that can, and often does, rob my son of the ability to even speak and walk.
Logan’s symptoms first appeared when he was just FOUR-years-old. I remember the tips of his fingers twitching uncontrollably for several minutes, and then stopping almost as abruptly as it had begun. The next day, it happened again. Logan’s doctor was dumbfounded. He sent us to Hurley Hospital, in Flint, Michigan where they performed bloodwork, an MRI and an EEG. Everything came back “normal.” Logan was then transferred to Detroit’s Children’s Hospital. Over the next two weeks, I (and FORTY plus doctors) watched the trembling in my boy’s fingers advance to his left arm and neck (which forced his head into a downward position). It quickly spread after that to Logan’s tongue, eyes and lower extremities. More bloodwork and another MRI was performed and my boy was tested for a variety of illnesses including: Wilson’s, Parkinson’s, Dystonia and Epilepsy. Eventually, the doctors threw up their hands and declared my boy a “zebra,” = (a person with a rare disease coupled with an unlikely diagnostic possibility). They said there was nothing more they could do for him beyond attempting to “control” his symptoms (trough an array of powerful and potentially dangerous drugs), and that the hospital would be releasing him back into my care.
I couldn’t believe it! My boy was no better off now than when he’d arrived two weeks earlier. In fact, he was WORSE...and “there was nothing more they could do!” I was heartbroken...and ANGRY! How, I questioned, was I supposed to stand by and watch my son go through these terrifying episodes...possibly for the rest of his life, without some kind of HOPE?
Two days after he been released from Detroit’s Children’s Hospital, our family doctor, (confused and appalled by the lack of a diagnosis), told me to take Logan to U of M and NOT to leave without an answer. For the next two weeks, my son endured some of the same tests he’d received in Detroit (along with some new ones), and a variety of new drugs. Eventually, they were able to get Logan’s tremors “partially” controlled, but sadly the end result was the same. These doctors, too, considered my boy a “zebra,” and I was told to “take him home.”
Not long after this, our family moved from Michigan to Georgia, where Logan has lay helpless in MORE hospitals, seen MORE doctors, (including a neurologists), been tested and RE-tested for MORE illnesses and prescribed MORE drugs.
I don’t know how much more my little boy’s body can endure. The stress and anxiety he suffers from (a direct result of FOUR YEARS of uncontrolled tremors and pain) has taken its toll on our entire family...most especially Logan, himself. PLEASE, PLEASE, PLEASE PEOPLE...HELP ME FIND SOMEONE who can offer my boy HOPE! Someone who can END HIS SUFFERING. Someone who can give him back his life.
Sincerely Logan's mom
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Y'va-re-che-cha Yahuah V'yish-mire-cha. Ya'er Yahuah panav elei-cha vihu-necha. Yi-sah Yahuah panav elei-cha, V'ya-sem l'cha shalom!
May Abba Yahuah Bless you and guard you. May the light of EL Shaddai shine upon you, and may Abba Yahuah be gracious to you. May the presence of Elohim be with you and give you peace! - Judy
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